Rainbow Trust Children's Charity
Address: Rainbow Trust Children's Charity , Southampton Family Support Team
Mount Pleasant Road
Brief description of what services your organisation offers:
The Rainbow Trust provides emotional and practical support to families whose son or daughter is affected by a life threatening or terminal illness.
Where the service is provided:
All Family Support takes place in the family's own home and community.
What the organisation provides:
Support is parent/carer led to ensure our Family Suport Workers offer support that is specifically tailored towards each child, young person and parent/carer in the family. Support includes:
- Providing emotional support to each member of the family throughout the child/young persons illness
- Spending time with the unwell child/young person at home or in hospital
- Accompanying and supporting parents and their child/young person during clinic and hospital appointments
- Providing short breaks for the unwell child and siblings which may include fun activities or trips to local amenities
- Helping maintain normality in the home by working with, and caring for siblings, to ensure the usual acitivities are continued for the family
- Providing practical support, housework and shopping
- Providing end of life care and ongoing bereavement work
Family support is available to all families whose son or daughter is affected by life threatening illness. This includes parents, carers, the unwell child, brothers, sisters, grandparents and help with extended family members to support each other.
Rainbow Trust describes life threatening conditions as those for which curative treatment may be feasible but might fail, for example cancer or irreversible organ failure. Severe neurological conditions may also be deemed life threatening once their cumulative effects cause weakness and susceptibility to major health complications.
The age range is 0 - 18 and any family can receive support from the point of their child/young person's diagnosis (including antenatal and neonatal periods when diagnosis has been made) and support with young people during transition towards adult services up to the age of 18.
Quality standards and expected outcomes for children and young people:
We constantly strive to improve our services and make sure we support families in a way that they want and need. Families have told us that there are five key areas where we make the biggest difference in their lives:
- We improve the family's ability to manage stress
- We maintain parents/carers stability and confidence
- We enable families to spend quality time together
- We improve the quality of children and young people's lives
- We enable families to keep communicating through loss and bereavement
How can this service be accessed?
Any family member or professional (on behalf of a family) can phone the team office, email the team manager or organisation (see details below). The support is available from Monday - Friday between 8am - 6pm. Some family visits may be for an hour, others for the whole day. This service is free to families and support is provided for as long as a family needs it and it meets ongoing eligiblity for continued support.
How and who to make a complaint to:
By talking to a member of staff, the majority of complaints can be sorted quicky and to everyone's satisfaction. Sometimes this does not happen and for whatever reason you may not be happy with the outcome. At this point you may decide you want to use our Complaints Procedure. This can be done by talking to the Family Support Manager (see details below)
Kathryn McInnes, Family Support Manager - Tel No: 023 8023 2129
Tel: 23 8023 2129